Thanks to the Jollette for the update yesterday. The outcome of it all is that I was at the ER for about 5 hours yesterday, having hot flashes, cold sweats and lots of hyperventilating. They gave me a couple of doses of Ativan which settled me down enough to go home.
The upshot of it all is that I either had an adverse reaction to a new medicine or an anxiety attack. The only other thing they were looking for was a blood clot in the lungs, which was not the case.
Thanks for your prayers, they are especially needed right now. I've tried to avoid using this as a platform for whining, but I'm pretty deeply in need of all your prayers. I have a pimply rash over my head, neck, upper chest, in my ears - every part of skin is covered with this stuff and every one of them stings and it is constant. I think I may have found a temporary solution that will give me relief in spurts, but I really just need this rash to go away - even with taking Ambien it has kept me awake most nights this week.
Along with that, they sent a psychiatric nurse in to evaluate me last week and she used the terms "severe depression" or "deep depression" or something like that and put me on an anti-depressant. It was the anti-depressant that caused that whole episode yesterday. I'm also not sure what is depression in the "messed up chemicals in the brain" sense and what is just the result of unremitting pain.
So, the bottom line is that we're going to stop treatments at Johns Hopkins for now. I understand they haven't done anything wrong, but I feel snakebit with them - every new thing they have tried has turned out bad. So, please pray for us as to what to do next. I'm not saying I won't go back on treatment but Lynette and I both feel we need to let this latest episode pass before thinking about it.